Good Morning World!
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| I LOVE this dress! It is so much fun to play with. |
So what we learned last week while at the hospital still reigns true today...plans change. There is always someone telling you what the plan is, and then it changes. We met with one of our cardiologists today and she said to expect surgery sometime to the middle or end of next week. I will update when we get an actual date. However, as I said before, plans can always change. The cardiologists and surgeon are all in discussion about when to have her surgery. Right now our job is to fatten this baby up! Since we have exhausted all other options they just want to be able to monitor her vitals at the hospital while we await surgery. Phil and I are making and giving her all her bottles and her NG tube feeding. We are much easier patients than last week when we weren't comfortable with the tube yet. Now we are in charge of just about everything. The nurses and doctors and just taking and watching her vitals. I'm taking lots of pictures because I want to document it all. My plan is to make her a book about the surgery to help explain it to her as she grows up. It's the only way I can think of how to explain why she has a big scar on her chest. Making customized children's books is actually something I'm really enjoying making for her. I have a future post that will go more into some of the things I have made for her.
Caroline woke up all smiles this morning. She has been kicking her legs around and looks like she is trying to ride a bike. One of her newest talents is chewing on her fingers then sticking them in her mouth and making herself choke. She doesn't seem to be to stressed by it because she keeps doing it over and over again. She has also started reaching out to us. If I put my hand in front of her she reaches out for it and puts her hand in mine. I love it! I dressed her in one of her favorite outfits today, a onesie dress. She loves to lift up the dress and play with it. She is such a happy baby :) We also got her favorite mobile back that she had last week. I kept bugging our nurses about it until they found it. Yep I'm that mom :) Though I feel like I had good reason to bug them about it. We got a mobile yesterday that she liked at first but got bored with it pretty quick. It just hung there and didn't play music or move or anything. Her favorite one moves back and forth and plays music. What is really cool is that she tries and is able to hit the toys as they move! What fabulous hand-eye coordination for a 11 week 5 day old baby! Maybe she will be some type of sports superstar. Who knows ;) She also is great at tracking just one object on the mobile as it moves. She has an AMAZING attention span. She will play with it for a good 20 minutes, smiling, and cooing at it. Clearly I had a right to bug the nurses about getting this mobile back...so many positive developmental aspects to it!
Philip and I are doing much better this morning. Yesterday was just so overwhelming. We are much more at peace today. We are just loving on our beautiful daughter and enjoying this unexpected family time. My parents are coming this weekend which I am looking forward to. All our family has been so supportive. We've been having them come in waves for support. Last week Phil's mom came. This week my parents. I think all of them are planning on going to Charlottesville for her surgery. We truly appreciate them rearranging schedules and plans to be here for us and for Caroline. We are so blessed.
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| Love that mobile but love Daddy more :) |
Have a great Thursday!
Love,
Megan
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